Tuesday, January 13, 2015

So Far Behind I'm Ahead...

I have this nagging worry lately.  I fear that poor Hope is getting the short end of the stick when it comes to this journal.  I can picture her as a grown up reading and reading all about Gavin and then Brian and then Gavin and Brian together - as I chronicled every day of their lives.  Then I can see her eagerly reading to get to her part.  The part where a week will go by without a single update.  Oh boy.  I better start putting money aside for her therapy.  Ha!
In all seriousness - I have had little time to write and I'm so far behind on updating.  I can't believe this - but we have another sick person in the house.  Ed has the flu.  This has, without a doubt, been the sickest winter in our history.  We had plans to head up to Lexington, Massachusetts for a few days this week to tour the area and work with a realtor (just in CASE we end up moving with Ed's company - nothing is decided yet) - but we had to cancel that.  We had also planned to go to New Hampshire after that so we could meet my niece, Emily's, brand new baby, William!!  I am officially a "Great Aunt!"  So I'm quite crushed that we won't be making that trip.  We'll reschedule for another time.  Hopefully this illness will stay with Ed and not spread around to the rest of us.  I really can't take another round of this.

Things have been busy and fun and the days are fast and filled with all kinds of new tricks and fun adventures.  Here are some highlights...

Hope loves to perform and can now do "So Big"... clap... give high fives!... and make fish faces!!
The relationship between Brian and Hope has taken a turn... for the even BETTER!  Every day when Brian bounds off the bus, he can't wait to play with his sister.  

He wants to teach her how to dance...
...they play with her toys and now they place chase around the house!  Hope is running now and she loves to try to catch Brian.  They run around the house laughing and laughing and laughing.  It's the best sound in the world.
Last week we had a small snowfall and Brian was so anxious to get out there and play.  It was so, bitter cold that day and I felt bad telling him I couldn't go out with him.  I thought it was too cold for Hope.  But Daddy saved the day when he came home from work and took Brian out in the dark!
They had the best time.
Hope's love affair with books continues.  Her two favorite books are a book about Apples (and she can say "Apple" now!) and Gavin's musical "Itsy Bitsy Spider" book.  
That's another sound that is music to my ears.  Gavin used to play with that book all day long.
This past weekend, Brian and I made "Christmas cookies" together!  Before you get too impressed, I bought these "ready to make" Thumbprint cookies from my friend, Claire's, business - HomeCooked in Paoli, PA.  They are delicious... don't create a mess... make Brian feel like a rock star baker... and did I mention they're delicious?  Brian gets very into the baking - even donning an apron he made in pre-school last year before he got started.
After pushing in the middles to create a little 'bowl' with a measuring spoon, he filled them with jelly.  He was very careful and precise - I was quite impressed!
I am hoping that we have a future baker in the house.  Mommy loves her desserts!  (When someone else makes them.  Let's be honest.)  Through no fault of Brian's - who never touched the oven during this process - the smoke alarm went on while baking.  Because that's what happens every dang time I attempt to cook or bake.  I wish I was joking!  It never happens to Ed!!  Conspiracy theories are swirling in my head... ha!
Last Sunday we went to the Church where I grew up... was baptized... got married... had our children baptized... and where we had Gavin's funeral.  We were invited to help our favorite priest (who married, baptized our kids and said Gavin's funeral mass) celebrate his 90th birthday!  What a great event it was.  Brian and Hope got all dressed up for the occasion.  As you can see, Hope is thrilled...
After mass, the celebration was held in the gym/cafeteria of my old grade school!  Brian was filled with questions.  Was this your classroom?  Which table was yours in the cafeteria?  Did you sit on this actual toilet in this actual bathroom when you were little?  He wanted to know everything.  I wish I remembered - this was 50 years ago!  (give or take - ha!)  As we were sitting at our table, which had china and crystal and delicious food - Brian leaned over to me holding his water goblet and said, "Mommy, this is soooo fancy.  Do you think they'll have a piñata later?"  I nearly spit out my own water!  When I told Father Kelly what Brian had said, he laughed and told me that there wouldn't be a piñata but he did have a big surprise coming at the end.  And boy, did he!  He had Mummers!  (If you don't know what Mummers are, it's a Philadelphia thing.  Fancy costumes with lots of sequins, banjos and other instruments, songs and strutting.  Lots of strutting.  You usually see Mummers in our annual New Year's Day parade in Philadelphia.)

It's hard for me to believe how quickly Hope has grown.  She's a little girl!  She's wearing dresses and tights and shoes and hairbows - and running!
Her hair is growing quickly and is still brown.  Her eyes are so unique - they're green and grey and have other flecks of color in them - they're beautiful.  Ed thinks they'll probably turn brown, but I'm not convinced!  
For the last week (probably more) she's been waking up 2-3 times a night.  Both of her eye teeth are coming in.  One is now out and the other one is emerging.  I've been a walking zombie as I've been getting very little sleep, but that's okay.  I've tried all kinds of remedies to no avail and even got a brand new baltic amber necklace for her (just in case the other one lost effectiveness) so hopefully that will help.  This is very different than our boys.  Especially Brian!  He never complained about a thing and I often discovered that he had teeth without even realizing they were coming in at all!  Poor Hope has been having a tough time of it, though, and we've done a lot of middle of the night bonding in her chair.
During the day she keeps me so, so busy.  This little girl is rarely still!  That's another difference between her and Brian.  You could put Brian down in front of a toy - come back in five minutes (kidding) and he'd look up and be like, "Oh, hey."  With Hope, you can't look away for five seconds!  If you do she's gone in a flash... rearranging the tupperware, fishing in the toilet, playing the piano...
Climbing the bookshelf...
Climbing the stairs!
Doing her hair...
Or trying on people's shoes!
She is such a fun little girl and I honestly love every moment that I spend getting to know her.  She laughs a lot, hugs a lot, protests a lot and just makes all of us so, very happy.

Brian was at the doctor yesterday for his annual physical and he passed with flying colors.  We love both of our doctors - Dr. Forman and Dr. Kienzle from Pediatric Associates of Paoli.  Dr. Kienzle did his physical and, as always, he had us laughing.  I've been torturing both of them since Gavin was an infant - taking photos of each of them with the kids.  I love that I have these photos (especially Gavin's) throughout the years.  Every time I bring out my camera, Dr. Kienzle says "I don't do this for anyone but you, you know."  I'm pretty sure that's because I'm the only goofball that does this!  Ha!
The nurses are wonderful there, too, and they're always so nice to my children.  Brian loved that she explained everything she was doing from listening to his heart...
...to taking his blood pressure...
...to checking for color blindness.
So far Brian's eyesight is perfect and we hope and pray it stays that way!  He has Mr. and Mrs. McGoo for parents so we hope he doesn't get our bad eyes!
He weighed in at 45 pounds and almost 3 feet, 9 inches tall.

Brian is also changing - a lot!  
He's more inquisitive and wants to know what we're talking about when he listens to Ed and I have conversations... how things work... why things happen.  When I picked him up early from school to head to the doctor for his physical, we had a little time to spare before the appointment.  The two of us sat in the car in the parking lot, which just happens to be in view of the hospital where Gavin has his first seizure and cardiac arrest before he died.  Brian wanted to talk about that day and asked me to tell him what happened again - a story I've repeated to him several times.  And then... the question I've been waiting for:

"How did Gavin get to Heaven?"

He was satisfied (for now) with this answer and didn't push for more information...

"Well, when Gavin died I bet he was surrounded by lots of people.  Angels and Jesus and all the people we love that are in Heaven already - like Pop and Darcy and Daddy's Mom and Dad and Mom-Mom and Pop-Pop.  I'm sure he wasn't scared at all. I like to think our bodies are like suitcases.  You know when we go on vacation and we pack all of our important things that we want to bring with us in our suitcases?  (he nodded)  And then when we get home we unpack our suitcases of all of our important things and then we don't need the suitcase anymore?  (he nodded again)  Well, our bodies are just like that!  All the important things are on the inside - our feelings and thoughts and our soul - all the things that make us who we are.  All the important parts of you - and me - and Gavin - and everyone - they're all on the inside.  So when Gavin died, all those important parts that made him special - his soul and his thoughts and his feelings and his love for us - that is the part that went to Heaven!  (Brian smiled and said "ohhh!")  He didn't need his "suitcase" anymore!  And because his thoughts and soul and love for us went to Heaven - that's how we can be SURE that he can still communicate with us from there.  We know that he still loves us and thinks of us and is waiting for us to join him one day."

Brian's only response (for now) was this...

"It's still really sad that Gavin died.  But that's really nice."

One day he will ask what happened to Gavin's "suitcase" - when he's ready.

And hopefully I'll be ready, too.

Wednesday, January 7, 2015

Our Not So Fairy Tale Life...

I love my husband.
Yesterday was Ed's 44th birthday.  For the next three months we'll be the same age!  I love joking with him that since he's Chinese - and they are taught to respect and even revere their elders - he really needs to respect and revere ME!  Then we have a good ha ha ha.  But the reality is... he does respect me.  Revere might be pushing it... I'm working on that one.  (Ha!)

Last night we got all dressed up and went out on a date to celebrate his special day.  It was nice to be out - just the two of us.  Even if we did talk about the kids most of the time!
Ask anyone who knows Ed... is related to Ed... briefly met Ed... all of them will tell you the same thing.  He is just the nicest guy.  That's really what attracted me to him initially!  We met while I was a flight attendant on one of his flights - totally random meeting as I never took this particular trip.  He was the most polite passenger I had ever served.

Before I married Ed - actually long before I even knew him - I had my life mapped out.  I'm sure I'm like most girls who dream of the fairy tale life.  Suburban home with a picket fence - golden retriever in the back of a Volvo wagon - two car seats and a husband who is doting.  I don't know what Ed dreamed about - but I am SURE it wasn't an alcoholic like me who, at the time, had caviar dreams and a pocketbook filled with airplane mini-bottles!  I'm exaggerating, of course, but the truth is - neither of us could have ever, EVER, predicted what life would have in store for us.

I will tell you - once I stopped drinking and got sober, I wanted to keep it a secret.  Forever.  There were many that knew - and witnessed me at my worst.  (I still feel shame when I see certain people!) But I hoped it would one day be hard for them to remember me like that... and anyone new in our life just didn't need to know.  Especially our children.  I was very against telling our children.  I had a fear that it would be held against me.  That one day they would not respect me for my alcoholism... or that they would pull a "but you did it!" type of thing.  Ed disagreed... he thought it was important that we tell the kids one day.  And he never said this until recently - he felt burdened by keeping the big secret.

When I wrote my whole, sordid story for Momastery - my "Mama Story" - I read it to Ed first to get his approval.  When I looked up - he was crying.  He was so, so proud of me.  This man has never shamed me for my past - and has been 100% supportive of my sobriety.  When I met him, he was a wine lover.  He had been collecting wine for years and loved to drink it... like a normal person.  After I got sober, he sold the entire collection.  Hundreds of bottles.  We never, ever have alcohol in the house - and, even though I never asked him to do any of this, he never drinks anymore.  Not just around me... I mean ever.  I'm so grateful for that.  I will tell you - having all of my cards on the table is the most freeing feeling there is.  I don't have to hide anything anymore!  And with millions having read my "Mamastory" - it sure does help to keep me accountable and sober!

We have gone through some horrible, tragic things in our marriage.  It is so far from a "fairy tale" it's not even funny.  We're not the perfect couple by any stretch of the imagination. We argue.  We take each other for granted.  We're stubborn.  But we always know that those feelings are temporary.  Nothing will tear us apart.  Ever.

The night before his birthday, we celebrated with the kids.  Brian, Hope and I went to the mall and Brian helped me pick out a nice pen we had engraved with "We Love You!" - and Brian chose some nice socks for his Dad.  
We also got a Carvel ice cream cake, Ed's favorite!  Brian played a practical joke on his Dad by putting an electric candle on the cake.  He got such a kick out of doing that!  
And an even bigger laugh as he watched him try to blow it out!  Ed has a great sense of humor.
I'm so grateful to have married a man who LOVES being a father.  Ed lives for these children of ours and they adore him.  As soon as he would walk in the door, Gavin's eyes would light up.  They had an undeniable bond.
Brian adores his Daddy and loves nothing more than to spend time with him.
And Hope?  Oh boy.  Ed is wrapped around her tiny, little finger.  
I wouldn't consider our life a fairy tale... and I am sure Ed wouldn't either.  But we love our life - and our little family.  I got lucky way back in 2002.  And I know it.  I won the love lottery... and to me that's much better than living in a silly fairy tale.

Happy Birthday, Ed!  We ALL love you so much.

Thursday, January 1, 2015

Here's To Another Year of Writing Our Stories! A Look Back At 2014...

This past year was quite a wild ride.  We are almost through the second year without Gavin and it has proven to be much more difficult for me than the first.  But it's been balanced by the joy of Hope's first year and watching her sail through her milestones!  Brian has changed so much, too, with his maturity... starting Kindergarten... making friends... and losing a tooth!  It has been a joy for me to witness all of this - and a privilege for me to have a place like this to write it all down.

I give you the top twenty moments of 2014!  You can click on any of the titles to go right back to that day and read the original link.

# 20  
Feeling Gavin In The Moonlight

Gavin's presence was never stronger than those first few months after Hope was born.  As I would sit with her through the middle of the night, I would flash back to those long nights when Gavin was an infant.  It was a painfully beautiful time in the moonlight.  And this is one of my favorite posts.


#19

My sister, Meg, drove down from New Hampshire to live at our house for a week!  She came to help me with the new baby, with Brian and with the house - but just having her here made it the best week ever!  Especially for Brian who really bonded with her.  I'll never forget what she did for us!!



#18

She could have smiled for Mommy.
She could have smiled for Daddy.
But her first smile was perfect and she reserved it for exactly the one who needed it the most.
It was a moment I will never forget.


#17

Because of readers I was nominated and won the "Best Blog" contest in Parent's Magazine!  It certainly gained me more exposure and more readers and it was hugely flattering!  I was thrilled to get more eyes on my blog... but not for the reason you might think.  Go ahead and read it - you'll see.


#16

How the death of Brian's "Fishie" gave him permission to mourn out loud.  I was surprised that Parent's Magazine printed this post - and for the impact it had in shares and comments and personal notes.  But I suppose I shouldn't be surprised about these things at all anymore.  Sometimes it's the smallest things, like a little fish, that teach the biggest lessons.


#15
Gavin's Playground Project (And WHY I Did It).

I decided to mark the one year anniversary of Gavin's death in a special way - by holding a fundraiser to raise money for an all abilities playground at the hospital where he died.  I had never even BEEN to a fundraiser before, let alone put one together and host it for over 300 people.  It all still feels like a dream.  As usual, drama surrounded me when Brian and I came down with the stomach flu a couple of days before.  Can you imagine my stress knowing over 300 people would show up to an event I had worked so hard to put together - and I was home in bed with a bucket?!  But I made it - and we raised over $64,000!  I didn't decide to do this for recognition... or any type of praise at all. I did this because of what I believe to be a universal truth.  Check out the post to see what that is.


#14

"I have thrown boxes in the garage with rage in my heart.  I have raised money to help children like Gavin with hope in my soul.  And I have birthed a child - dropped straight from Heaven - with gratitude to God.  This year has been unimaginable in so many ways."


#13

The day I went back to Barnes & Noble, the place I had my last outing with Gavin and Brian, was monumental.  It was like I had climbed Mt. Everest and lived to tell the tale.  A huge moment for me in my grief journey this year, for sure.


#12

A (non-alcoholic!) toast to my husband on our TEN YEAR anniversary!


#11
Vegas Vow Renewal

1. Because you only live once.  
2. Because if you can't get back to Hawaii, you should bring Hawaii to you.  
And 3. Because if you can involve Elvis in any way, see number 1.
One of the best ideas I ever had, "thank you very much."


#10

"And this is the face of a Mom who worries every day that I will be asked to endure another 5 1/2.  It makes no logical sense.  But then again, grief is not always logical or linear or kind.  I pray every night for patience - with myself.  And I pray that I can continue to parent Brian in a way that will make Gavin proud. Gavin ADORED his brother - much in the way that Brian ADORES Hope."

It was not easy for me when Brian reached the age that Gavin was when he died... but I did it.


#9

A post about feeling Gavin's presence in the daylight... and how the light often hides the darkness. Even if it's just for a little while.



#8

My letter to Brian as he enters Kindergarten.


#7

And I was feeling pretty angry about it.  He would have rocked seven.



#6

A post about the surprising person I thought about when I sat beside my dying son.


#5
Where In The World Did We Celebrate Seven?

We have decided that each year for Gavin's birthday we will go to an amusement park as a family. Gavin loved rides and we know this would make him so happy to see us having fun for him.  This year we had a great time at Sesame Place!


#4

The day I was surprised with an award was a reminder to me that no matter what I am given or where life takes me, none of it compares to the most important work I will ever do.


#3

The day Hope turned one.  What a celebration of a surprising, joyous and healing year!


#2

My birthday letter to a little boy who humbles me on a daily basis.


#1

This post is also, coincidentally, about another Christmas with Hope.  Because if there is one running theme through our family story... it is that.  No matter what, there is always hope.  


I love a New Year.  I don't like the getting old part, but I love a fresh start... an empty book in which I can continue to write our story.  I can't make up what happens in our story, but make no mistake - I can write it.  We ALL have the power to write our own stories.  You can change the course of your life with your attitude alone.  You are the only person who is responsible for your happiness, your attitude and your health.  And you can influence your children to live the same way because they will learn by watching you.

This year, my goals are to remember everything I just wrote and live by it.  And to continue to go with the flow with my journal entries.  Some days I feel like writing - some days I just don't - and both are okay.

Thank you so much, truly, for coming with me as I chronicle our lives.  I never expected that our story would affect so many - and I am continuously humbled by those of you who have trusted me with your own stories.  I may not always have time to respond to all the mail and comments, but I read them all with gratitude!!

This entire blog - and my CaringBridge before it - is really one big love letter to my children.  I am sure that they will always know how much I loved them... but it's nice that I can leave them tangible proof!

Here's to another year of writing our stories... Happy 2015!




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