Chasing Rainbows: Holding Pattern...

Saturday, November 24, 2012

Holding Pattern...

I am still not able to access my journal on my laptop OR my iPad. I have no idea why! So once again, I am typing this from the tiny keys on my phone. Not that easy when you're on pain meds that sometimes make your eyes drift into a semi asleep position. So I will do my best tonight. Don't expect much!

I'm still here, obviously. I still feel positively awful. The fevers are gone, but my abdominal pain has stuck around to torment me. I cheered out loud when the doctor told me that the test for C. Difficile came back negative. Go ahead and google it - I bet you'll cheer, too. There are still a couple tests pending that should come back tomorrow.

The theory at this point after the doctor and surgeon discussed my case at length is this...

I have a bowel infection which causes inflammation... which produces pain.

Inconveniently, I had an ovarian cyst rupture at the same time... which added pain. A lot.

They saw fluid in my abdominal cavity, which can cause discomfort. And they suspect that the ruptured cyst leaked blood into my abdominal cavity. The perfect storm.

I was grateful for a few things today. I was able to sleep for two three hour stretches during the night. I even dreamed! This afternoon my doctor increased my pain medication which helped a lot. My Mom came to visit me and brought beautiful pink roses. I was so happy to have her there. Then my Mom went to my house to stay with the boys so Ed could come see me! And just as he arrived, so did my sister, Bean. Tomorrow if the tests come back negative, they will take me off isolation and Ed will bring the boys to see me!

I'm in a very depressing and painful holding pattern. Hopefully I'll have more to report tomorrow. In the meantime, say a prayer for me?

2 comments:

AnonymousNovember 24, 2012 at 9:18 PM
Hope you feel better! It may just be an inconveniently timed stomach virus. I had one a few weeks ago that left me in so much pain I didn't eat for 4 days. But a word of caution, if the boys are still sick, they shouldn't visit. That means coughing, sneezing, runny nose, or fever in the past 48 hours. I know you really want to see them, but if they are sick, Skype or FaceTime is a better option for the time being. And then you have to get well so you can go home and be with them! Praying that you feel better soon!
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AnonymousNovember 24, 2012 at 9:50 PM
You don't know me... at all. But I am surely feeling for you and praying for you. Hang in there.
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Gavin's Playground Project

Gavin's Playground Project was born from my desire to see an "All Abilities" playground built at Nemours/A.I. duPont Hospital for Children in Wilmington, Delaware. This is the hospital where Gavin spent a lot of time during his life... and where he ultimately died, surrounded by friendly and familiar faces. To mark the one year anniversary of his death, I held a fundraiser on April 5, 2014. You can read all about it in THIS post.

We raised a LOT of money, but not enough for a playground! If you would like to contribute to help make this playground a reality - so no kids will ever have to sit on the sidelines watching their peers play - you can contribute directly to the hospital through the Chasing Rainbows fundraising page HERE. Your donation will go directly to the hospital for the playground and is tax deductible. You can also create your own fundraising team page and start collecting donations in honor of anyone you want!! There is also a mailing address on their page if you prefer to mail a check. Designate your contribution in memory of Gavin Leong - or write in that this is for the playground so your dollars will go to the right place. Thank you for your support of Gavin's Playground Project!

Gavin's Trust Project

I created "Gavin's Trust Project" to help support Gavin's friends who receive services from the Chester County Intermediate Unit in Pennsylvania. I wanted to continue to try to "make the impossible... possible" for kids like Gavin, knowing well how hard it can be to get much needed "special needs" items. It makes me happy to know that even after his death, Gavin continues to help others. Click HERE to learn more about the Trust Project! All of your donations, big and small, will be added to Gavin's Trust Project to help therapists and teachers get what they need for children in this program. You can write a check made out to CCIU and mail it to: Chester County Intermediate Unit, c/o Deb Hiller, 455 Boot Rd., Downingtown, PA 19335. Please be sure to add "Gavin's Trust Project" in the memo. Thank you on behalf of me and my little superhero!