Showing posts with label Brian and Gavin's room. Show all posts
Showing posts with label Brian and Gavin's room. Show all posts

Sunday, August 23, 2015

Epic Adventures...

Tonight I am writing this journal entry from an undisclosed location... in our backyard. Brian and I are on an EPIC adventure!

This afternoon, I surprised him with a tent I bought before we moved and told him that the two of us would be camping out tonight. He was beyond excited.
He hung out in the yard "helping" me as I set up the tent. I should tell you - not to brag - okay, I'm bragging - that I have never set up a tent before. I've never even slept in a tent before!! I'm not a "roughing it" kind of gal, believe me. I was sooo proud of myself for getting this tent up! This picture shows it "almost" done for those with eagle eyes.
Soon it was completed - with a hinged front door and everything. Nighttime couldn't come fast enough (for Brian, that is. Ha!)
He is finally asleep and as soon as I finish this journal, I will attempt to sleep as well. I am a little concerned about my arthritic body and how I'll feel tomorrow - but guess what? It's already worth it. Tonight has been so, extra special - and just what both of us needed.
I bought two books ahead of today for this special occasion. One about first grade and the other a sequel to a book we love that is filled with stories that have wisdom to take away. We read for a good 40 minutes.
Brian was far from tired after that so we laid on his sleeping bag and looked at the stars... had conversations about school starting... about his fears... about jealousy when his sister gets a lot of attention...
...we took silly pictures and talked about his top tooth being loose and reminisced about our old house...
...and we laughed. A lot. I know Brian felt very special tonight. Finally he said he was tired and that he was going to close his eyes.
"I'm not going to talk to you - and you don't talk to me - okay, Mommy?" he told me.
"No problem, Brian. Good night! I love you!" I replied.
Silence....

And then I heard...

"Mommy? Can you turn your light on for a second?" he asked.
I shined the light so we could see each other and he softy said...
I had a lot of fun doing this with you. Thank you for our adventure. I love you...
 Okay, now go to sleep."
To be honest... I can't believe we're still out here. I thought for sure he'd want to go inside the minute it got dark! 

Brian has another epic adventure coming up August 31st... the first day of First Grade!! This past week we attended an open house in his new classroom. I was very grateful to Granny for coming to stay with Hope so Brian and I could spend the time together. (Ed had to work and was so disappointed he couldn't make it) Brian's new teacher, Mrs. Korom, created a challenge for all the students that day. She gave step by step instructions - which they had to follow in order. The first step was for Brian to find his desk. He smiled from ear to ear and couldn't contain his joy when he saw that his very best friend, Daniel, would be sitting directly across from him!!!! And his good friend, Grace, was right next to him!! Seriously - he has talked about this every day since.
The instructions were quite detailed - "Empty your crayons and pencils and scissors into your plastic cigar box and place it in the left side of your desk..."
"Bring your cardboard cigar box to your teacher and tell her your name so she can write it on your box..."
"Sit in the reading circle and look around - count to 25 - write your name on the easel..."
"Bring your three copybooks to your teacher - find the stickers with your name on them and place them on the books. Then put them in the right piles."
"Sit at your desk and draw a picture of yourself. Write your name on the paper and take it to your teacher who will then give you a small treat..."
It was such a fun morning and really got Brian excited for First Grade. I commend Mrs. Korom for her unique open house! Brian was able to interact with her several times, she shook his hand and welcomed him, he toured the classroom in a relaxed way, he got to pick a prize from her treasure chest which thrilled him and he had fun! 

Everyone thinks their children are special - and I am no exception. Brian is honestly one of my favorite people on this Earth. Not just because he's my son... I actually really like the person that he is. Sure, he can be wild at times and need to be told to calm down... or get too bossy or act jealous when all eyes aren't on him... but he's 6. He's still figuring out this whole shebang called life.

But he is truly one of the sweetest little boys. And he's quite deep. One day last week he called my name while we were out in the yard and I turned to see him holding this leaf, shaped like a heart.
"Here, Mommy - I want to give you my heart!" he said. 
We spend a lot of time outside. When Hope takes her morning nap, the two of us love that time together. We go on the tree swing or take a walk on our little walking trail (thank God for the long range video monitor!)... he helps me water my flowers and we talk about "stuff..."
...we spy frogs and butterflies and tiny little caterpillars. And we often see Praying Mantis, which is very cool!
But when Hope is awake, he lights up. Ed and I really never imagined that they would be as close as they are. With such a big age difference, we thought they wouldn't play together all that much. Boy, were we wrong. They LOVE to play together - and Hope tries HARD to do everything Brian does. He can sometimes forget she's a baby and we have to remind him that no, she can't wrestle - but to be honest, we often forget she's a baby too. She's a tough little girl!!
This week I spontaneously decided to take the kids to a local Church carnival. The first thing Brian said as we walked in was that he wanted to pick rides that he and Hope could go on together. "We should go on all those rides first so she won't feel left out if I go on bigger rides without her later," he told me. She was thrilled to sit right next to him and the two of them laughed and laughed.
Then later, when Brian went on the roller coaster alone...Hope sat patiently in her stroller waving frantically and yelling "HI BIAN! HI BIAN" as he rolled by us.
I'll often come up on the two of them doing something sweet. Brian will take Hope to a window in the house that has the perfect view of our water fountain, which he knows she loves.
Or he'll ask her for a kiss and hug before bed with his arms stretched wide...
...and she always obliges him.
One of our biggest concerns when Gavin was dying - before we knew that I was pregnant with Hope - was that Brian would be desperately lonely. How would we ever fill that void even just a tiny bit?!? Then, when we found out Hope would be coming into the world, we worried that the age difference would be too great for a bond as great as he had with Gavin. Boy, were we wrong again. Brian kept his huge space in his heart for his brother - and opened his heart wide for his new sister. 

Brian chose a Superhero theme for his new room, which he still calls the "Brian-Gavin" room. He still sleeps in his brother's bed and wants Gavin's name near his on the wall.
He loves his room, which overlooks the trickling water fountain that Gavin would have loved. There's a nice desk for him to do homework or write notes (which I often find by my things - "I love Mom" notes will never get old and I've saved every one!)
He loves to "chill," as he puts it, in his bed.
Truth be told, every day is an "epic adventure" with this child. I am so proud to be his Mom. And when he wakes up out here under the sunrise - I will tell him just that.

Thursday, July 31, 2014

Her Room With a View...

Eight months ago, this little angel arrived a whole month early and took our breath away.  She was beautiful from day one...
...and eight months later, that hasn't changed.
Here are some fun facts about Hope this month as you scroll through the 432 photos of her (I can't help myself)...
She crawls on all fours now!  And she's getting FAST!
She seems just as interested in books as both of her brothers.
She has a great personality.  She can strike a serious pose...
...she's curious and observant...
...and happy!!
One thing that hasn't changed?  Her love for her big brother.  He just dotes on her and she loves all the attention he smothers her with!
Brian has been "play acting" a lot lately.  For the last two days he has gone by the name, "Chartoil."  Chartoil is a lifeguard who keeps his sister safe and all day asks "Is everything alright in here?  Do you need any help?"  I give him all kinds of jobs.  Chartoil is a great helper.  He even helped me bathe Hope.
When I asked him to smile for the picture he replied, 
"No thank you.  I'm at work."
Hope woke up on her eight month "birthday" to a big surprise!
A NEW ROOM!!  With Brian's permission (he loved the idea, actually) - we moved Hope's nursery into his old room.  And Hope's old nursery is now the guest room with Brian's furniture and nautical theme.  I love that Hope is now in a room that was Gavin's baby nursery - and Brian's "big boy room" once he moved out of his nursery.  And I also love that both rooms have paint colors that work with the existing decor.  Thank God.  

Here's a little tour of her new room.  I still have to find spots for her shelves, but you'll get the idea...
If you look down outside her window, you have a great view of Gavin's memorial garden.
In this room, her book display fits!
I love that we have a book display in every room.  Showing the covers makes it much more inviting.  Hope has already spent a lot of time sitting (and standing!) in front of her books!
The "Jellybean Tree" print was purchased at duPont Hospital's gift shop!  They have the cutest things there.  I was in that hospital so much with Gavin when he was a baby and I was pregnant with Brian - that Brian's nursery was almost completely decorated with items from this gift shop!
I also love that I can fit the photos of Mommy and Daddy in her room now.

As promised, here is what the new "Brian and Gavin's" room looks like...

There's only so much we can do as far as rearranging.  The bed is so big and can only fit on one side of the room or the other.  So we moved it across the room.  But to Brian - little changes are BIG fun!
There were certain things that he requested to keep the same.  Gavin's name had to stay on the wall...
Gavin's picture (which was sent to us by a reader very early on after his death!) stays on the shelf.  The butterflies that Brian colored at the hospital - and then whispered a wish into them. He then whispered the same wishes into Gavin's ear as he said goodbye to him - so these butterflies hold sacred secrets between brothers.  And a photo from our trip to Disney World after Gavin died will stay, too.  Gavin's favorite show was "The Little Einsteins" and we got to meet "June" from the show.  We took a picture of her holding Gavin's embroidered mouse ears.  Brian loves that picture so much.
The "Invisible String" and heart that he made in the hospital still hangs on the closet door.  We pull that string and say goodnight to Gavin as a family every night.  And that is Gavin's "His Royal Highness" pillow that has hung in his room since before he was born.
Brian still sleeps in Gavin's special needs bed.  His pillowcase is one of two that we have that were Gavin's over the four days he spent in the hospital before he died.  And Brian sleeps under those three blankets - all of which kept Gavin warm from April 10th until he died on April 14th, 2013.
And Brian wanted to keep Gavin's clock, which says "Once Upon A Time" around the edges.
The newest addition is the Lego table (and all the Angry Bird stuffed toys!!)).  Brian and I spend a lot of time at this Lego table - it's covered with our creations.  I am pretty confident that Gavin loves how his room is being used...and appreciated.

Here's an update on Hope's eczema journey!  It is actually going to be much easier than I expected, I think.  I ended up eliminating all of the food I was giving her (which was not a lot) for two days.  On those two days I just did the back massage only.  She is so good for this - and sometimes it actually puts her to sleep!  Then I spent two days with banana in a glass jar against her skin while I did the back massage.  On the third day, I re-introduced banana.  Then I moved on and put avocado in a jar - massaged her back for two days while exposing her to that - and then re-introduced it.  This is what I plan to do with everything - the foods I have already given her... and all future foods before she takes her first bite.

Her skin looks dramatically different.  The very few patches she has left are small and smooth.

BEFORE:
AFTER:
BEFORE:
AFTER:
Her back before was pretty bad (I don't have a photo) - but now it's as smooth as can be.
The real proof will be over time.... in different temperatures, eating different foods, etc.  I'll keep you posted!

Tomorrow is Brian's very last swim class at Cabrini College.  I wasn't able to get a great video of him jumping in the pool today - so hopefully I will tomorrow!  Ed will be there for his 'graduation' so I'll be able to focus on capturing the action a little better.  
Here's a great video of him "swimming" on his back with his sweet instructor, Katie.  I understand why they call the course "Swim Fast" - he has gotten so fast going across the pool by himself!!
We're so proud of him.  But more importantly, he's so proud of himself!!

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