Today, Gavin amazed us yet again. This time it was for Miss Stephanie in Occupational Therapy. While he has taken a spoon and put it in his mouth before - today it was over and over and over. It looked just like this...
Each time he fed himself, we cheered. He LOVED that!! And I loved that each time we cheered and clapped - he'd show off his cute little dimples.
This morning, Gavin and I headed to DuPont Hospital to meet with one of the Infectious Disease doctors. It was a very interesting visit and I'm SO glad I made the appointment. We were there to discuss the possibility of Gavin having "Congenital Lyme Disease" - and also to discuss my diagnosis. He looked at my lab report and told me that my results were "suspicious" to him. I won't get into writing all the details just in case I get things wrong here and there (my brain is so screwy lately!). Basically, he thought I might have a "false positive" - something I didn't know was possible. He said that patients with Rheumatoid Arthritis often show up for a positive Lyme because of how they do the test. The Lyme tests are not that great. But people freak out and go crazy treating the Lyme Disease they think they have...sometimes missing what they really DO have. He suggested the possibility of Mononucleosis, Epstein Barr or Parvovirus. (I called my doctor before getting in the car to go home and he ordered more tests immediately - which I got today.)
He also said that if in fact I did have Lyme, it would be a recent exposure. In his professional opinion, there's no way I had Lyme before. So the thought that Gavin may have Lyme from birth was thrown out the window. Getting him tested, he thought, would be for our curiosity only. I decided that I'd wait until the tests from today come back before I make a decision on that one. Right now I'm on information overload.
I left his office feeling good - a little confused - and informed. I do worry about the accurate testing. If I don't have Lyme...and the new tests all come back negative...then what next? I would feel relieved if I found out that I didn't have Lyme Disease after all...but I would want some kind of explanation for why I'm feeling as bad as I am!
I have no time for all of these symptoms. Not when my Superhero is staging his next big miracle! I'm telling you - and mark my words - something is brewing with our Gavin.
