Showing posts with label bilirubin. Show all posts
Showing posts with label bilirubin. Show all posts

Saturday, December 7, 2013

One Week Old!...

What a difference a week makes.  This time last week, Ed and Brian dropped me off at the hospital... fully expecting to come pick me up in a few hours.  Instead, I found out I was in labor and had blood pressures that refused to come down despite multiple medications through my IV.  Next thing I know, my OB looked me in the eye and said, "You might want to call Ed.  Looks like you're having a baby today!"
I had such strong feelings about where I wanted to deliver.  I wanted Hope to be born at Paoli Hospital. It was where Gavin and Brian were born... where Gavin spent a month in the NICU... where we bonded with nurses who knew us... and where Gavin had his febrile seizure, which ultimately led to his death.  I really did not want to deliver at Lankenau - it was where I spent 5 1/2 days delivering Darcy. I made my wishes known just about every time I saw my OB.  Last week I ended up at Lankenau because my OB happened to be there when I called.  By last week I had decided to look at the entire hospital issue differently... just in case it didn't turn out the way I had hoped.  I decided that maybe it was in the plan to deliver both of my daughters at Lankenau... and my sons at Paoli.  Maybe in delivering Hope at Lankenau, it would help heal the part of my heart that was left broken after leaving Darcy there.
As it turns out  - I was right.  As I was wheeled down the hall for my C-Section, I gasped when I saw the room we were about to enter.  It was the same room where I had a surgical procedure that would hopefully help Darcy deliver.  Before the door even opened, I had a flashback to that day... laying on the table.  I really believe there are no coincidences.  I was meant to deliver in that hospital... in that room.  And the nursing care I received along the way - from my frequent visits to my four day stay after Hope arrived - was exceptional.  Everyone was compassionate... encouraging... and laughed at my drugged up jokes.  And the NICU nurses and doctor that cared for Hope were reassuring and supportive.  I'll never forget the four days I spent at Lankenau.  Everything happened the way it was supposed to... someone guided the entire experience, including me needing to deliver there.
The last couple days have been great and challenging and wonderful.  Hope spent a total of one full day on the bili-blanket before we were told it was okay to take it off!  As of this morning, her numbers came down considerably.  She won't need the blanket anymore at all!  Her weight came down one ounce, but it's not a concern.  She's now 5lbs, 10oz.  We'll be taking her to the pediatrician on Monday morning for another weight check.
The challenging parts have been waking her sleepy self for feedings... and a plugged duct in one of my breasts that has been pretty painful.  She will take a bottle when she's this sleepy - so I've decided to pump a bottle for her feedings for the time being.  After she finishes, I nurse her until she is "done."  It seems to be working out well.  My goal is to be sure she maintains her weight and doesn't miss feedings.  The rest will fall into place later.
Brian has continued to be the best big brother - helper - and all around angel child.  He wants to help with everything, which is so adorable.  He will sing to Hope and talk to her and he loves to ask me all kinds of questions about her and her care.  My favorite from today - as I was breastfeeding her - "Mama?  When I was a baby, did I drink milk out of those same breasts?" as he pointed to mine.
He also seems to know that it's a busy, exhausting time right now.  He'll play independently or just snuggle up in bed with me to pass the time.  Today the three of us watched "Happy Feet" from my bed. (A very odd movie, if you ask me!)  And Ed took him out to Love Bomb him with a trip to Arnold's! He really seems to be handling this transition well.  We're so proud of him!

This first week just flew by.  I can't find the words to express my gratitude for this unexpected miracle.

Thursday, December 5, 2013

My Little Night Light...

Last night was Hope's first night at home!  She was so excited that she stayed up most of the night to celebrate.  Actually, I woke her up every two hours (or less) to nurse - hoping that by today we would find out her Bilirubin levels had come down.  It was an exhausting night... and today I am pretty confident that my clothes didn't match and my hair looked wonky... but I don't care.  I'm feeling that grateful.  I realized today that I forgot to mention something about Hope's delivery.  The obstetrician told us afterward that she had had a true knot in her umbilical cord.  I couldn't believe it.  Perhaps it would have meant nothing if she had been born full term.  But I can't help but think of what could have happened if she had continued to grow bigger - and that knot grew tighter.  That information made me feel a lot more grateful for her early arrival.  

This morning, Ed took over with getting Brian ready for school.  He must have swallowed his breakfast whole because it seemed he was walking into our bedroom within minutes!

"I'm just going to hang out with you and Hope before school, Mama."

He promptly climbed up on the bed and started talking to Hope and singing songs to her and saying things like, "It's okay.  Shhhh.  I love you!  Sleep tight."  He even made up an original Star Wars tune.  Check it out...

After Ed brought Brian to school, the two of us (with our mismatched outfits and wonky hairdos) schlepped over to see our wonderful (and well dressed) pediatrician, Dr. Forman.
He thought Hope looked great!  We love our pediatricians... and we have a special bond with Dr. Forman, who was there for us on the day of Gavin's seizure in the emergency room.  It was nice to see him for such a happy occasion.  

Breastfeeding is going well, but because I can't "measure" how much she's getting... I was worried going into today that she might have lost some weight.  I was psyched when she was holding steady at 5lbs 9oz!  
After the appointment, we had to bring her over to the hospital for a heel stick to check her Bilirubin levels.  Fortunately, we could go to the local hospital.  Unfortunately, we also had to get back to the hospital where I delivered - which is much further.  We forgot to bring home my pumped breast milk that the nurses stored for me!  Ed took the trip for me and I stayed home with Brian and Hope.

Brian is just so enamored with his sister - I love it.  It reminds me of how happy and in love Gavin was with his little brother!  Picture Brian's face at the end of the changing table asking a million questions about baby care.  Or picture him showing Hope his favorite toys and explaining what Star Wars or Angry Bird characters were his favorites.  While Ed was gone, Brian decided we should have a picnic on our bed - the three of us.  So we did - we watched a Scooby Doo movie and ate popcorn until he said, "Okay - now let's just talk, Mommy."

(p.s. - Yes, this is the Nap Nanny.  Please see the very bottom of this post for a note about this!)
No surprise, he wanted to talk about Gavin.  And he specifically asked me to tell him what it was like when he was a baby - and how much Gavin loved him when he came home from the hospital.  That was an easy story for me to tell - those days seem like yesterday. 
Ed and I are so in love with our little girl.  It still feels like a dream.  We are so sure that Gavin had a hand in getting his sister here safely.  
Later in the day, we got word that Hope's bilirubin levels increased.  It's not so bad that it requires her to be re-hospitalized... but it's high enough that it requires phototherapy.  I had NO idea until now that they offer phototherapy at home!  It's called a "Bili-blanket."  A home care company delivered it to our house this evening and showed us how Hope should wear it.  She'll keep it on all night long and then, tomorrow, a nurse will come by the house to do another heel stick and examine her.  If the levels come back normal, she'll be able to lose the bili-blanket.  
She actually seems to like it!  The machine that makes it run vibrates slightly and lets out a peaceful white noise.  Maybe both of us will get a good night's sleep tonight!  
And I have a bonus night light if I have to get up to pee!

**The green reclining seat you see in the photos is the "Nap Nanny."  I have the best readers in the world - and I got a ton of mail last night informing me that there was a recall on this seat.  I do know that.  I never had a Nap Nanny for the boys - and a friend gave this to me for a different use than you might think!  When Gavin was an infant and had such low tone, I used to prop him on a therapy ramp we had.  It made for great photos because he was supported.  I don't have that ramp anymore - but thought this Nap Nanny would be the next best thing for the 24,000 photos I expect to take of Hope over the next month or so.  I was getting ready for a little photo session when I put her in it on my bed with Brian.  Thank you, as always, for your concern!!**
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