Showing posts with label infant loss. Show all posts
Showing posts with label infant loss. Show all posts

Wednesday, October 19, 2016

Lifetime Movies...

This morning I had the honor to speak to a local Mom's group about pregnancy and infant loss - and infertility. Unfortunately, I am an unwilling expert (by experience only) on this topic. The theme for their year is looking for the light even when darkness is enveloping... which is an opportunity to hope recklessly and to witness God's presence guiding things seen and unseen, comfortable and uncomfortable. Their theme for their meeting today specifically was "hope" - and how we can focus on our faith and hope to get us through even our darkest hours. I sure do hope I was able to provide some faith, hope and love to these lovely mothers. Here is my speech - minus the ad-libs that I really shouldn't attempt while giving a speech as I ALWAYS end up losing my place. Oh well, I'm still a work in progress...

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I’m happy to be back here today to be with all of you. The last time I was here, I talked about how our family walked through the tragedies of losing a daughter to stillbirth and a 5 1/2 year old son to a random febrile seizure that stopped his heart.

I’m back today to discuss how, as a Mother, I got through 13 miscarriages. But I also want to talk about infertility as well. If any of you have struggled with getting pregnant - then you know that makes losing a pregnancy that much harder. So basically, I’m back to lighten up the mood a little after my last talk.

But seriously, this is not even a joking matter. So many of us have endured the loss of a child… in one way or another. I am sure if I asked those who have lost a baby to raise their hands, more than half the room would. And you may be learning about a loss for the first time from someone sitting next to you that you thought you knew so well. And I bet if I asked those who have had seasons of infertility to raise their hands, we’d have similar results.

“It wasn’t supposed to be like this.”  I uttered that phrase in prayer… out loud… to my parents… to my husband… and to the sky with my fists raised high many times in my life. 

If you know what it feels like to watch “everyone else” around you get married - as the calendar keeps turning and your birthdays keep returning and all you want is for your “life to start.” You may have said, “It wasn’t supposed to be like this.”

If you know what it feels like to want to start a family with the person you love, yet it doesn’t happen on the first try… or the fifth… so you get on the internet and look in books and learn about ovulation sticks and monitors, good lubes and bad, what foods to eat and which to avoid. If you know what it feels like to be red flagged at the pharmacy for stockpiling Robittussin during ovulation - or thought very seriously that you would do ANYthing under the sun just to get your stressed out partner to perform before your window closed. If you have had to practice patience with your partner who, let’s face it, doesn’t have the luxury of faking it like we do and is on a precisely timed performance schedule, you may have said, “It wasn’t supposed to be like this.”

If you know what it feels like to realize that, despite your valiant and best efforts, you’re still not pregnant. If you know what it feels like to accept that you need the help of a fertility specialist and you decide not telling anyone is the best worst idea. If you know what it feels like to inject yourself and feel your ovaries swelling beyond the size of your head. If you know what it feels like to experience medically managed hormones that are raging out of control - on top of your own emotions that are trying to fight for a place at the crowded table of rage and fear and sadness and hope and desperation. If you know what it feels like to be inseminated or retrieved or implanted or even to swipe right on potential egg donors that look a little bit like you - maybe - if you turn your head and squint a little. And all this time, the calendar keeps having the audacity to turn. You may have said, “Wow. It really wasn’t supposed to be like this.”


Trying to get pregnant - or needing fertility aid - is often a deep, dark secret. For some reason, many of us are told - or think we need to keep our struggles with fertility a secret. One of the most stressful things you can go through - we often go through alone. Our only ally the nurses we see at our appointments - or the fertility doctor who may have to refresh his memory on your case… or your name… before he walks in the room. And then there’s your partner. The one you need for the most obvious reasons - and the less obvious ones, at least to him. If we’re being honest, the woman endures the brunt of all of this. Much is asked of her body, her mind, her spirit. She is the one who will take her temperature, get injections, put her feet in stirrups, carry - and sometimes lose - a pregnancy. But we can’t forget the men. Their job is hard, too, and we expect them to understand what we go through when it’s hard enough for US to understand what we’re going through. They are on call, expected to perform - sometimes into a little cup with only a door between their most vulnerable moment and a room filled with strangers and an anxious wife. We can’t forget the men. It wasn’t supposed to be like this for them, either.

But then… hopefully… it happens. You get the two lines or the phone call or the ultrasound with the proof. You are pregnant and suddenly you feel like you can exhale. Finally your life can begin. You’re cautious, though, and decide to not tell anyone for fear of the worst - another best worst idea ever.

If you’re lucky, this is it. This is your happy ending. The worst is over and infertility or stressful trying or anxious waiting is all you’ll have to go through to have a baby in your arms. You will count your lucky stars - and thank the one who holds them in place - that you made it.

But one in FOUR - ONE IN FOUR mothers won’t be as blessed. It may be a shocking discovery in the doctor’s office when your labs are too low or the ultrasound doesn’t pick up signs of life. It may be a shocking discovery at home when you feel your hope slipping out between your legs. Or you may make it so far that you are able to deliver and hopefully even hold the baby you’ll never take home.

If ANY of these things have happened to you - whether it was one time or multiple times - I am so, so sorry.

ALL of these things… and more… have happened to me.


I have had quite a journey, no one can deny. I sometimes wonder if I should pitch my life story to Lifetime as a biopic. I’ve also had quite a journey with God. For some time it seemed that I’d be tested with a tragedy - and then lifted out of that deep valley and just getting settled when BAM - tested again - and that went up and down and on and on for years. Especially with pregnancies, motherhood and loss. Many times I would feel like I was stepping on lost futures and broken promises to climb out of the valley of loss. I couldn’t understand what God was trying to accomplish with my life. Often my prayers were angry ones. “What are you trying to prove here? Are you looking to break me? You got that - I’m broken. Why do these things keep happening to me? What is the point? Can you cut me a break - PLEASE?? I’m not a valley girl - I deserve some time up on the hills!”

Maybe you’ve been in that place. Maybe you’ve stood at the bottom of a deep, dark valley and scream/prayed the same angry prayers to God. If you have, I have news for you. God sees you there. And obviously he hears you because you’re “scream/praying.” But the God that is there for you on the top of the hill is the same God that is there for you, too, when you’re flat on your face in the valley. It took me a long time to realize something. If I prayed for something - even if it was temporary relief from heartache - and nothing changed - I felt like it was a failure. A wasted prayer. That God didn’t feel I deserved the happy ending. What I know now is that the answers to my prayers may not have been what I asked for - but they were what I needed in order to live out His story. The story He had written long ago. The answers to my prayers were the strength to stand up - even at the bottom of the valley - and to speak, to share my story and even have the guts to praise Him when storms would blow through.

You see, that Biopic of my life has already been written, casted, produced and directed by God. I may not like parts of it - I may be confused by a lot of it - I may believe that a few years back there could have used subtitles for me to understand them - but like any good and perfect thing from above, it will come together and make sense one day. And that’s true for all of you. You can’t walk out or give up before the end of your own stories. That’s why they call it faith. If you walked into a movie after it started and stayed for two minutes and then left - you wouldn’t be able to “judge” or “review” or even explain the story to anyone. Just from those two minutes, you couldn’t even predict how it would end. Well, that’s how it is with our lives. Don’t get hung up on year 12 or year 27 or year 43. See your “Lifetime movie” through to the end and trust that the Lord has it all worked out already and it’s a blockbuster. I promise.

If you’re in the thick of infertility drama… or you’ve had a miscarriage - or several - and you’re feeling discouraged, alone, forsaken, angry or depressed - I would encourage you today to hold on. I know, believe me, that it is very, very hard to be patient when you’re trying to conceive. But try to take a step back and remember that this moment, as painful as it is - and I know that it is indeed very painful - is just a two minute portion of that movie of yours.

You know, I’ve always wondered why women were so quiet about infertility struggles - or pregnancies - or miscarriages. Is it that they fear being labeled as “failures” because they aren’t getting pregnant as quick as they expected - or at all? Is it that they fear if they share their excitement about a new pregnancy - and then lose the baby - that they would then have to share their loss, their failure, their feelings with others? Well, I would ask you to consider this: What if it’s possible that what you’re going through isn’t really about you at all? God doesn’t waste any of our struggles. At the risk of sounding super “churchy” - I do believe that sometimes it’s the enemy that wants to keep us quiet. Staying quiet in our struggles can test our faith… test our marriages… test our emotional health. But do you know what kinds of things can happen when you speak up? When you share about your struggles with fertility, you may be very surprised to hear a lot of “We’re going through that, too!” or “We struggled and here are some things we did.” You never know when you’ll learn something new - and, as my Dad always said, don’t ever feel you’re so smart that you can’t learn from someone else. Especially those “unexpected” people. When you share about your pregnancy and the excitement of early life - you allow others to celebrate that miracle, too. Life - no matter how short it is - is truly a miracle of God’s. Then, if you end up losing that baby - you already have a group of people that will be there to hold you up for a while and mourn the life that they came to know for even a brief time. The more women talk about infertility and miscarriage, the less stigma there will be… and the more support they’ll receive. It’s really that simple.

If you’ve lost babies, also know that there is absolutely no right or wrong way to handle it. My first miscarriage was before I had Gavin and it was very painful. We decided to go away on a little vacation and shift our focus away from the loss for a little bit. But I was anxious to try again almost immediately. My second loss was drawn out. I lost Gavin’s twin at the beginning of my second trimester and there was nothing they could do but leave the baby in there with his brother. Every ultrasound was bittersweet - and slightly awful as I watched one son grow and the other slowly get inched out into nothingness. But I had to focus on my surviving baby and really didn’t have time to break down. As the numbers rose on my losses, I developed a thick exterior to deal with it and just kept plugging along. Does that mean I didn’t feel the loss enough? Of course not. When Darcy was born still, we had a cherry tree planted, a locket made with her name and date, we have her ashes in our home and bought a book to read to her brothers. Does that mean I loved her more than the others I lost? Of course it doesn’t. Someone else may have chosen to be knocked out and had her delivered and taken away - which was suggested to me. Would that have meant that they loved their child less? Of course not. We all do what we have to do to survive heartaches like these… and there is absolutely no right or wrong way to grieve a miscarriage, loss of a child or even the loss of the HOPE for a child. It is said that “comparison is the thief of joy.” But you know what I feel? I feel that comparison can also be the thief of grief. Don’t look to others to tell you how you should or shouldn’t grieve.

If you’re looking for ideas to help support a loved one or friend through the loss of a pregnancy or an infant - food. Through many of our losses, we had a wonderful neighborhood that would set up a meal train. Now that you know how many losses I had, it’s pretty obvious that I didn’t have to cook for three years. But meals - especially meals in throw away containers that are just left on the porch with no strings attached unless you are specifically requested to visit - they are the most delicious kind of meals. And if you do have the chance to spend time with the Mom - or even the Dad - just listen. There’s nothing parents like more than to talk about their children - or the children they hoped for. It’s not the time to tell your story - you’ll get that chance another day. Just listen. And listen some more. And maybe offer to pray. And food.

I have been outspoken about all of my personal struggles - and our struggles as parents - and it has been one of the greatest and most surprising blessings of my life. I’ve been on the receiving end of a lot of support and prayers and encouragement. But I’ve also - even without knowing it - been able to help so many others feel less alone. And I’ve hopefully been able to model what it looks like to trust in God’s plan for my life - even if I sometimes accuse him of throwing in an unnecessary plot twist that really doesn’t feel necessary. I worship a God who I know will use my story for good. I worship a God who I am SURE will give me that happy “fairy tale” ending when - not if - but WHEN I meet Him face to face and get to hold my children once again. And I worship a God who, in the meantime, is the best babysitter anyone could ever ask for. That God I worship is your God, too. He’s holding my babies - all of them. And I know He is holding all of  yours, too. And even though they are there and we are here - they will always be part of our "Lifetime Movies."

God bless all of you... and all of our babies.

(Feel free to share your stories of love and loss in the comments - I would be honored to read them.)



Tuesday, October 15, 2013

How Pregnancy and Infant Loss Awareness Day Can Change ALL Of Us...

Today is a national day of remembrance for the babies that were lost to miscarriage... stillbirth... or as infants.

You might be tempted to click away, feeling this entry just doesn't pertain to you.  But it does.  This entry is relevant to ALL of us - women young and old and even men.  Surely we've all come face to face with a woman who has lost a baby.  It's hard to know what to do - what to say - how to act - know what she needs.  Hopefully, the entry below that I wrote last year on this day will help you in the future.  But if not, please use thirty seconds of your time to think of the lost babies - including mine - with love.

There is an interesting movement on a website called "Count the Kicks."  They encourage pregnant women in the third trimester to count their baby's kicks each day and keep track of how many movements they feel in a certain period of time.  It can truly save a lot of babies from stillbirth!  If you notice movements slowing down, you should head to your doctor right away so they can see if there is anything going wrong with your pregnancy.  Unfortunately, this wouldn't have helped me save Darcy as she had a freak cord accident that couldn't have been reversed.  But there are so many things that CAN be done - and this campaign really empowers Moms to know when something just isn't right. Check out their website if you'd like to learn how to count kicks or if you'd like to download their kick counting app.

I was also informed about a beautiful book called Sunshine After the Storm:  A Survival Guide for the Grieving Mother.  It's a collection of stories from grieving mothers of all kinds.  Those who have suffered miscarriages, stillbirths, infant loss and even the loss of an older child.  It's available as a free download to Kindle until October 17th.  Click the book title to take you to Amazon if you're interested in this book for you - or for a grieving friend.  I downloaded it yesterday afternoon and made the mistake of starting it in bed last night.  One hour later... I was still reading.  And this morning I must have hit my snooze button ten times.

Here is my entry from last year - just as relevant to me now as it was then.  Actually, even more so since we lost Gavin.  

In memory of our sweet Darcy Claire and our beloved Gavin David...

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Today is National Pregnancy And Infant Loss Awareness Day.  I'm pretty sure you all know why this day would mean something to me.

I've always wanted to devote a blog post to the friends and family of those who've lost a baby to miscarriage or stillbirth.  Today seems like the perfect day to do it.  I think many people are at a loss when looking to support or comfort the Mom and Dad who lost a baby.  I thought I'd offer my two cents - coming from my own, numerous and unfortunate losses.  This is, of course, from my perspective.  Everyone is different.  But, well...here goes! 

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Please Don't Judge.
It's very easy to project your experiences or feelings onto another person.  Maybe you had one miscarriage...or ten.  And maybe you were over it in a week...or never.  Everyone is different.  Try not to judge another person for how they handle their own loss. You may think they should be "over it" after a certain period of time - that their grief is out of proportion because the baby wasn't even born...or  they never got to know him or her.  Or that they got "over it" too quickly.  It's always best to keep your judgements to yourself and respect everyone's journey as just that...their journey.  People may find it strange that I don't recall the dates of all of my losses.  And most of the time - I don't remember how many losses I've had.  Every single time I am asked, I need to stop and re-count.  I suppose the way I deal with it is to block it all out.  I truly stopped keeping track after my fourth loss.

Please Don't Avoid.
The worst feeling in the world is to feel completely isolated and abandoned after a loss.  Let's face it - no one likes to talk about death.  And if you add the whole "OBGYN" portion to it, people feel queasy. But imagine going from the incredible excitement of life in your womb... picking out names... planning a nursery...to BOOM - gone.  It's a "falling off a cliff" feeling.  Be there when your friend reaches the bottom and needs help getting back up the mountain.

Please Drop the Platitudes!
We've all heard them - and many of us have said them.  

"God doesn't give us more than we can handle," 
"Something was probably wrong with the baby - this was natures way of taking care of that," (especially offensive if you already have a child with special needs) 
"You can try again,
"There's always adoption," 
"It wasn't the right time,"  
"You just need to relax and it will happen"

.... and so on and so on.  Truly - I promise you - the best possible thing you can say to a friend who lost a baby is simple.  Just say "I'm so, so sorry.  I can't imagine what you're going through." (Because you can't!) Even if you went through it - it was in your own way.  Trust me on this.

While I could say something about each of the above expressions and explain why they are annoying/offensive/insulting/frustrating/all of the above, I should also say this:  If you have just lost a baby and hear any or all of the above (I've heard them all and more over the years!) - don't take anything personally.  Remember that the person across from you is probably feeling awkward and nervous and just doesn't know what to say.  Sometimes people who want to help think they can do so by giving you advice or their opinions.  Always assume (for your own sanity) that it comes from a well meaning place.  Nod politely, say thank you and move on.  Trust me on this one.

Please Wait to Tell Your Story.
If you get a phone call from your friend telling you they just lost their baby, now is not the time to start telling your story.  Especially don't tell your story if it isn't your story.  Hearing about your neighbor's daughter or your cousin's friend is not helpful.  Focus on your friend and save the story for later when the dust has settled.

Please Remember the Husbands.
A baby is made by two people.  A miscarriage or stillbirth is grieved by the same two people.  The husband bears the extra burden of society's expectation.  He's supposed to be the strong one supporting the wife as she gets showered with the attention medically and emotionally.  Please don't forget the Daddys of these lost babies.

Please Don't Bring THIS Up.
"At least you have other children."
This was a kick in the gut for me each and every time I heard it.  I have always felt like comments beginning with the words "just" and "at least" were one way to (unintentionally) minimize a situation.  The comment, in my opinion, implies that I'm not grateful for the children I have.  Just because I have two boys (that I am so grateful for!) doesn't mean I don't miss the 10 babies (9 miscarriages and a stillbirth) that I've lost along the way.  Actually, having Gavin and Brian means I know exactly what I missed with each loss.  The comment is also a bit of a guilt trip.  And there's nothing worse than a guilt trip when you're already feeling guilty for losing the baby inside you.

Please Don't Attempt to Figure Out Why.

"It was God's plan."  

"Maybe you worked out too much."

"I told you you were too {fill in the blank} and that it may affect the pregnancy!"
They are already questioning why.  They are likely already blaming themselves unnecessarily.  Try not to add to that.

Please Listen.
I've learned in my lifetime that most people want to be heard.  They want to feel that their story - their experiences - their suffering - matters.  They don't need advice or conversation much of the time...they just want you to listen.  The subject matter is painful - miscarriages and stillbirths are ugly and devastating.  But try to just listen.  And if they aren't able to talk - it's okay to be still.  The truth is - there really are no words at a time like this.


Please Remember the Babies.
If you are really close, remembering the date they choose to celebrate the baby they lost is such a loving thing to do.  If they named the baby, there is nothing better than to hear people say his or her name.  I love when people mention Darcy by name - it makes my heart skips a beat!  It's nice to send a card or a note that you're thinking of them.  And if you get a gift - one that memorializes the baby in some way is extra special.  A very special friend had a star named after Darcy Claire when she was born - and it's something I will treasure forever.

Losing a baby is a devastating experience.  And I can tell you from my own experience, loss number 10 was just as excruciating as loss number one.  I hope, on this National Day of Remembrance, that people everywhere will come out of the shadows and talk about their losses.  I encourage anyone who wants to write their story to use my comment section as a way to jump in the water.  Whether you are 21 or 71, you never forget the babies you carried.

Today I celebrate ALL of our babies...and thank them for the way that they changed us.


We remember them every day.
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