Chasing Rainbows: Watch This, Watch This, Watch This...

Monday, August 20, 2012

Watch This, Watch This, Watch This...

WATCH THIS!

This phrase comes out of Brian's mouth about 482 times a day. Sometimes he's ready with a trick. Other times he comes up with one right on the spot...improv-style.

Watch this! Watch this! Watch this, Mama! And when I finally look - he jumps up and down. Or he rolls a ball. Or he turns into a "Swiffering Machine"...

Or he starts to dance. Or he makes a waterfall in the bathtub...

Although it can *kinda, sorta* get old hearing him say Watch this! Watch this! Watch this! Watch this! Watch this! Watch this, Mama! (see what I mean?)... it also makes me happy. Why? Because letting him perfect his acting, comedic and improvisational skills means this cute little face...

...is one step further away from any contact sports.

Speaking of cute little faces! Gavin continues to amaze with his self feeding!

Tomorrow we're having a small get together with Gavin's team. I know they are proud of all of his progress as much as we are. It was a great two years with them - and we are sad to see (almost) all of them go. Miss Wendy will continue to be his Physical Therapist at school...and Miss Carol will continue to monitor his hearing, just in case. Stay tuned for a special post tomorrow.

Last night I discovered that one of my diamond earrings was missing. Ed gave me diamond studs in the hospital after Gavin was born. He could have given me a rubber bracelet and I would have worn it every day because of the meaning. Losing this earring is less about the money (well - Ed totally disagrees) than the sentiment for me. I'm really crushed. We looked everywhere - even taking apart drains. If you live in my neighborhood, that was me upside down in our very full, very smelly, very buggy and disgusting trash can this afternoon in the driveway. I donned medical gloves and went through every single bag. At this point, I have given up finding that earring. If it turns up - it will be a miracle, really. The timing really sucks, though, I have to say.

Oh well. It could be worse. At least I didn't lose my mind.

Oh wait...

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Gavin's Playground Project

Gavin's Playground Project was born from my desire to see an "All Abilities" playground built at Nemours/A.I. duPont Hospital for Children in Wilmington, Delaware. This is the hospital where Gavin spent a lot of time during his life... and where he ultimately died, surrounded by friendly and familiar faces. To mark the one year anniversary of his death, I held a fundraiser on April 5, 2014. You can read all about it in THIS post.

We raised a LOT of money, but not enough for a playground! If you would like to contribute to help make this playground a reality - so no kids will ever have to sit on the sidelines watching their peers play - you can contribute directly to the hospital through the Chasing Rainbows fundraising page HERE. Your donation will go directly to the hospital for the playground and is tax deductible. You can also create your own fundraising team page and start collecting donations in honor of anyone you want!! There is also a mailing address on their page if you prefer to mail a check. Designate your contribution in memory of Gavin Leong - or write in that this is for the playground so your dollars will go to the right place. Thank you for your support of Gavin's Playground Project!

Gavin's Trust Project

I created "Gavin's Trust Project" to help support Gavin's friends who receive services from the Chester County Intermediate Unit in Pennsylvania. I wanted to continue to try to "make the impossible... possible" for kids like Gavin, knowing well how hard it can be to get much needed "special needs" items. It makes me happy to know that even after his death, Gavin continues to help others. Click HERE to learn more about the Trust Project! All of your donations, big and small, will be added to Gavin's Trust Project to help therapists and teachers get what they need for children in this program. You can write a check made out to CCIU and mail it to: Chester County Intermediate Unit, c/o Deb Hiller, 455 Boot Rd., Downingtown, PA 19335. Please be sure to add "Gavin's Trust Project" in the memo. Thank you on behalf of me and my little superhero!