Monday, August 20, 2012

Watch This, Watch This, Watch This...

WATCH THIS!


This phrase comes out of Brian's mouth about 482 times a day.  Sometimes he's ready with a trick.  Other times he comes up with one right on the spot...improv-style.

Watch this!  Watch this!  Watch this, Mama!  And when I finally look - he jumps up and down.  Or he rolls a ball.  Or he turns into a "Swiffering Machine"...

Or he starts to dance.  Or he makes a waterfall in the bathtub...

Although it can *kinda, sorta* get old hearing him say Watch this!  Watch this!  Watch this!  Watch this!  Watch this!  Watch this, Mama! (see what I mean?)... it also makes me happy.  Why?  Because letting him perfect his acting, comedic and improvisational skills means this cute little face...

...is one step further away from any contact sports.   

Speaking of cute little faces!  Gavin continues to amaze with his self feeding!

Tomorrow we're having a small get together with Gavin's team.  I know they are proud of all of his progress as much as we are.  It was a great two years with them - and we are sad to see (almost) all of them go.  Miss Wendy will continue to be his Physical Therapist at school...and Miss Carol will continue to monitor his hearing, just in case.  Stay tuned for a special post tomorrow.

Last night I discovered that one of my diamond earrings was missing.  Ed gave me diamond studs in the hospital after Gavin was born.  He could have given me a rubber bracelet and I would have worn it every day because of the meaning.  Losing this earring is less about the money (well - Ed totally disagrees) than the sentiment for me.  I'm really crushed.  We looked everywhere - even taking apart drains.  If you live in my neighborhood, that was me upside down in our very full, very smelly, very buggy and disgusting trash can this afternoon in the driveway.  I donned medical gloves and went through every single bag.  At this point, I have given up finding that earring.  If it turns up - it will be a miracle, really.  The timing really sucks, though, I have to say.

Oh well.  It could be worse.  At least I didn't lose my mind.

Oh wait...

Friday, August 17, 2012

Reclaiming Me...

The last few weeks have been rather difficult for me.  I was happy for the week alone with the boys as I worked through an internal struggle that really had to happen.  I decided that I am walking away from trying to have another baby.  For good.  It's over.  The book is now closed.  The end.

It really was a huge struggle.  Before we went into our last attempt using an egg donor, I announced that I was okay with walking away whether we got pregnant or not.  The truth was - I never expected it wouldn't work.  In my heart I thought the young, healthy egg was our golden ticket to another child.  I didn't believe that I wasn't pregnant - and I had an over abundance of negative pregnancy tests to prove my disbelief.  I was sure the next test I took would turn positive.  It didn't.

So during the week I had with the boys - I did a lot of staring at them.  I did a lot of crying.  I did a lot of confident boasting, saying out loud "I'm good!  Two boys is perfect!  Why mess with a good thing!  Think of the money we'll save that can go to important things like Mommy's plastic surgery fund!"  I was back and forth and back and forth - and shared my struggle with no one.  Not even my husband.  It was something I had to work through on my own, as strange as that may sound to many of you.

And then, just like that, I became sure.  As sure as one can be when they feel broken hearted with uncontrollable regret.  Ed and I were lying in bed one night and, taking his hand, I told him what I had struggled to decide.  He squeezed my hand and wiped my tears and sweetly said, "Are you sure?"

I am sure.

You see, Ed may have been okay being "done" after we delivered Darcy Claire.  But he knew in his heart and his soul that this was so important to me.  He was unbelievably supportive.  If I squeezed his hand and said, "I want to try again," he would have probably said "Let's do it."  Maybe a poor choice of words - but it fits, so I'll leave it like that.

I poured out my soul to him as we laid there - telling him how hard it was for me to walk away.  Trying to conceive had, in a sense, become my identity.  

For years.  It had become the focus of our marriage.  It had, to be frank, turned our sex life into an orchestrated, precisely timed and stressful chore.  Anyone who has struggled to conceive - or been through infertility issues - will say an AMEN to that one.  I've written many times about the ups and downs of infertility. You can read "Infertility Sucks"  and, my most popular post,  "Whispers of Hope".

I told him it was time to reclaim everything.  Reclaim our marriage, reclaim our love life...and reclaim myself.  

I need to reclaim me.

Part of me, regardless of what anyone says, feels like I have failed.  I so wanted to have another biological sibling for the boys.  I thought it was important for their future - especially if they faced a future together without us there.  Giving that up is hard - but life isn't always perfect.  I'll adjust - and the boys will adjust.  All they'll know is having each other and, just like everyone else in the world, they will figure it out.

When the tears stopped flowing, I got up to get a tissue in the bathroom.  I looked at my email before coming back to bed and just couldn't believe my eyes.  In the time before we went to bed and getting up for a tissue, I received an email out of the blue.  It was from The Church of the Holy Innocents in Brooklyn, New York.  In this church, they have a "Shrine of the Holy Innocents" where hundreds of people stop in to pray each day.  The focus of that shrine is a large book that holds the names of thousands of unborn babies or babies born that passed away.  It's called the book of life.  Darcy's name is in there.  The only correspondence I have ever received from them was a certificate showing that her name was inscribed in the book and people are praying for her every day.  Why they would randomly send me an email - on that day in particular - will always be a mystery.  It was almost like a sign from my daughter that I was going to be okay with moving on.

So...the process has already begun.  I have pulled all the special things I had been saving (which filled a large portion of our basement!) upstairs.  I'll be sorting and pricing and getting them ready to sell.

Like the car seat I distinctly remember picking out - green.  We knew Gavin was a boy when we bought it, but we wanted a neutral color in case our next child was a girl.


That car seat brought Gavin home after his month long stay in the NICU...


...and then held Brian, too!  (Barely!)

The bouncy seat.  Ed and I chose the "Rainforest" patterns for much of our baby equipment.  It reminded us of our fateful meeting in Puerto Rico.

The rainforest sounds brought back great memories for us - and seeing our own children enjoying it was icing on the cake.

The mirrors.

The cradle.  God, did I love this cradle. When the boys weren't IN our bed, they were in this at the foot of our bed.
And when Gavin was on a feeding tube and oxygen, having him close by was key for nighttime feeding pump changes or oxygen alarms going off.

Our Boppy pillows which we got a LOT of use out of.  

Mostly for propping the boys for some of our favorite photos of all time.  Like this one of Gavin which was taken shortly after his very long hospitalization as an infant...

...or this one of big brother, Gavin, snuggling up to his newborn brother.

The special infant clothes, including the one's I had put aside from Darcy, that I was holding onto for that next child.  One of our favorites - worn by both boys - is that little  doggy outfit.  
Brian wore that outfit for my all time favorite photo (so far) of the boys.

If you haven't been through this, you likely wouldn't understand the inner turmoil I'm feeling.  Each item I pick up makes me happy because I flash back to every moment Gavin or Brian cooed or laughed or had a "first" or was soothed to sleep.  But then it makes me sad that I'll never have another baby in my arms.  Something as simple as our cool bathtub that was like a bathtub in our bathtub it was so big got me choked up today.  I instantly remembered this...

But now it's time to enjoy all of these things for what they are - memories.  And to remember that as much as I feel my dreams have been shattered...

...they have also come true.




Thursday, August 16, 2012

Following Up...

Gavin and I met with everyone's favorite Ear, Nose & Throat doc this afternoon.  Dr. O'Reilly is the surgeon who performed his Adenoidectomy and Myringotomy procedures.  Today we had a follow up - mostly to check on his ear tubes which looked great.

Dr. O'Reilly is a very popular doctor at DuPont.  He has a way of making you feel like you are his favorite family - that your child is his favorite patient - and that everything you say is important and fascinating.  As you can see, Gavin has his full attention.

I had two lingering concerns since the surgery.  One was a question about the ear tubes.  I had heard that they have a relatively short shelf life - sometimes they fall out after six months.  Sometimes a year.  I was worried that if they did come out that it would mean a trip back to the operating room.  It's always a bad place for Gavin to be.

Dr. O'Reilly put his finger quickly up to his mouth as if to "shush" me.  He didn't want me to jinx anything - because some kids don't need new tubes placed after the first set.  We're hoping that Gavin is one of those kids.

The other question had to do with food and liquid coming out of Gavin's nose when he eats.  This actually started several weeks before the surgery for a short while - then went away just as quickly.  But now it's happening again - almost at every meal.  The doctor told me that it's because Gavin has a high palate - and his palate doesn't seal off the nasopharyngeal pathway leaving an easy shuttle for his Quinoa, Chicken, Milk and more.  He assured me it doesn't hurt him - and that, unfortunately, there is no easy fix.  The fix is typically plastic surgery.

Let me say this loud and clear.  Gavin has already had several "eye lifts" - and it will be over my dead (and prematurely old and saggy) body if he gets another plastic surgery before I get my first.  Got it?

Anyway, where was I?  Right - food spurting out of his nose.  It will be a bit of a social issue, but nothing we should be alarmed about.  He said I could set up a swallow study to see if they have any recommendations.  I'm pondering the idea - but I don't know if it will be useful.  We'll have to see...

While we were there, we met with the Audiology department.  They needed to repeat Gavin's tympanograms  so they could be sure the tubes were placed and working properly.  They were.  She also decided to test Gavin's hearing in the booth.  This was just to test his developmental level of hearing - not each ear separately.  Gavin did a great job.  He was so enamored with the female audiologist (she was very pretty!) and LOVED hearing her voice through the speakers.  You have to check out my giggly, flirtatious boy in this video...

The last test she did was Otoacoustic emissions, or OAEs.  This tests the health of his inner ear.  All of the hearing tests came back with the same results as the sedated hearing test done under anesthesia.  Mild hearing loss (that doesn't need any hearing aid) in the left ear only.  I'm still amazed to this day.

The other great news is that Gavin gained back the weight he lost during his long hospitalization!  He's back to his fighting weight of 31 pounds.  And, if you're wondering, our tall boy is now 3 feet, 1.6 inches!
*************

We had a big treat tonight - Granny came over for dinner!  When Ed got home from work, he found me in an apron with a roasting pan holding a hot, crispy whole chicken.  He screamed and ran out the back door - he thought he was in the wrong house.  

Brian and Gavin LOVE their Granny.  She's just as patient and fun with my kids as she was with me, so I can see why.

And, because she's a Granny and this is part of the "Granny Code" - she kept feeding Brian bites of her chocolate, chocolate, chocolate dessert - with chocolate on top - until he started acting like this...

...and putting his underpants on his head.

We love her.  But I think next time I'll serve blueberries for dessert.

Going to bed, Brian and I had a deep conversation.  
He said "Granny went home."  
Yes, I said...she went home.  
"What will she do?"  
Well, I said, she'll probably watch some TV and go to bed - just like Mommy and Daddy will do!
He thought about that for a minute and then...
"Pop's in Heaven."
Yes, I said - Pop's in Heaven and he's very happy.  But we're sad that we won't get to see him again.
He thought about that again and then...
"Pop's watching the same show as Granny in Heaven.  He's with Darcy in Heaven."
I swallowed the lump I had in my throat.  I think you're right, I said.  Pop and Darcy are very happy.  Heaven is a happy place to be!!  And Pop and Granny will always be watching the same show, Brian.  You're a wise little boy.

And with that, he rolled over and snuggled under his covers.


Wednesday, August 15, 2012

Rescued by Republicans!...

Yesterday was a pretty bad day.  One of those days where if something could go wrong...it did.

Like using your little window of time in the afternoon to find a place to notarize something.  This something happened to be a form to replace Gavin's handicap placard for our car.  It was "misplaced" (stolen, I say) when we had our car at the dealer.  It's not the biggest deal - we've had the placard in our glove box for about 3 years and used it probably twice.  But anyway... there were two places that listed themselves as having a notary service.  And when I got to each place I was told they don't have that service anymore.  So I gave up and came home UGH!  I hate wasted time.  Next time, I'll call ahead.

But the bigger, more critical issue involves Gavin going to school.  It's kind of a complicated story so I hope you'll follow this...

When Miss Sara started working with us, she had several background checks done - including a Child Abuse clearance done by a payroll agency as a requirement of our insurance.  That was in November or December.  Now that Sara is going to go to school with Gavin, she needs background checks for the school district.  FBI check, Fingerprints and this Child Abuse clearance.  I decided to get Fingerprints and the FBI check done on my own - thinking that they would be more current and last longer through the school year.  I called the payroll agency about the Child Abuse clearance though - I don't know why - and asked if they could send me a copy.  It took a long time for them to respond, but I had time so I wasn't sweating it.  Then - when they got back to me - they told me that the original (and only) results were mailed to Sara back when she started with us.  I asked Sara is she could bring it in.  She didn't recall ever seeing it, but she tore her apartment apart looking for it.  Not finding it, her parents tore their house apart looking for it there.  No luck.

While Gavin was in the hospital, Sara came to visit and we filled out all new paperwork for this background check.  I gave her money for the required money order and she took care of mailing it in.  The only problem?  It likely wouldn't be back in time for the first day of school.  And Sara wouldn't be allowed to go with Gavin is all her clearances weren't back.  THEN I started to panic.

I started trying to call the Department of Welfare - the keepers of the Child Abuse Clearances.  Thinking it was crazy that the ONLY copy would have been sent to Sara - and they MUST have a record of the results that they could mail me.  Getting through to a person at this agency was ridiculous. After about a week of persistent trying, I finally reached a person.  The heavens parted - I knew everything would be okay then.

It wasn't.

I was told that they had NO RECORD of Sara.  Meaning - NO RECORD.  As in EVER.  This particular background check was never done.  An oversight, likely, and not an issue for our family as we have no reason not to trust Sara.  But a little scary nonetheless, wouldn't you say?  I found all of this out around 4pm yesterday and for the rest of the day and night I was pretty upset.  This clearance has a turnaround time of at LEAST three weeks.  If this was going to keep Gavin from starting school on time - because of someone else's mistake - I was going to be pissed.

But.  Have no fear.  I am my father's daughter.  And if I learned anything from that man it was to figure out how to get your needs met.  And go to the top if you have to.

So I contacted the Pennsylvania State Representative office of (Republican) Warren Kampf.  I explained the entire story and they said they could absolutely help us.  This morning we took a field trip to his office and met with his Chief of Staff, Sean, and his assistant.  

They made some calls to their Harrisburg connections - told us that this clearance would be fast tracked and mailed the form for us.  Even with their contacts, it may arrive a day late - which means that Gavin might miss his first day.  But it's better than weeks late.  They are also going to look into why she never got one done to begin with when she started with us.

As a bonus, Sean is also a notary!  He took care of notarizing Gavin's handicap placard replacement form and mailed that in, too!

Today turned out to be a pretty great day.  But, uh... let's keep the fact that I voted Democrat between us, shall we?

Monday, August 13, 2012

The Peanut Butter Challenge...

Today was the final test for Brian.  The allergist wanted him to go through a three hour (more, actually!) peanut butter challenge before she officially declared him "allergy free."  She didn't expect anything to happen - but had to test him with real peanut butter just in case.

I am thrilled...and relieved...and, to be honest, freaking PROUD!...to tell you - Brian is no longer allergic to peanuts!!!!  Our allergy elimination technique worked!  It took a lot of dedication and patience, but we did it.  

If you've never heard of or gone through a "peanut butter challenge" (or any challenge with an allergist), I'll explain how it worked.

A nurse at the office started Brian off with the tiniest smear of peanut butter on a stick - she put it right on his tongue.

We supplied the food - I brought peanut butter, crackers, cookies, pretzels and milk.  They supplied lollipops, stickers and fancy pencils.  I supplied the wonderful Miss Sara (who is back from her vacation - WOO HOO!), movies, toys and books.

Brian entertained us by drawing on his Doodler and asking us to guess each drawing.  Sara guessed rhinoceros for this one - good guess, eh?

Oh, and I also supplied a super-supportive brother to cheer Brian on.  Usually it's Brian waiting on Gavin at the doctors...so Gavin was more than happy to wait patiently.

Every ten minutes the nurse would come in with increasing amounts of peanut butter.  For a long time, she didn't want Brian to have anything else - no other food and no milk.  He never complained.  And - to make me even MORE proud, he peed on their potty three times while we were there!!  That's a big deal - there was so much going on to distract him.

Soon the peanut butter started to appear on a cookie...

...and then some crackers.

Brian gobbled it all up with a smile.  He smiled even bigger when she said he could have some milk finally!!  The largest amount was two tablespoons - which looked like four peanut butter sandwich crackers she made.

After the last food challenge, we waited a half hour until it was time to be checked by the doctor.  After examining Brian's back and chest and listening to his lungs - she gave us the official good news!

I'm always so happy when I can take one less thing off my children's plates.  Or - in this case - add one thing back ON my child's plate!!

To celebrate, I'd like to give away three wonderful children's books to any of you who have a child with a peanut allergy.  "Food Allergies and Me," "The Day I Met The Nuts," and "The BugaBees - Friends With Food Allergies."  They are especially good for newly diagnosed kids as a way to explain their new way of living to them.  I have three books to give to three different readers.  Leave a comment with your peanut allergy story and I'll get in touch with the first three to respond!  The one requirement - the comment has to be on my blog.  Don't leave your personal contact information there - just your story!  And also, be sure to tell me that you want one of the books.

Sunday, August 12, 2012

What's On My Mind Tonight...


I can remember when you fit in the palm of my hand
Felt so good in it, no bigger than a minute
How it amazes me, you're changing with every blink
Faster than a flower blooms they grow up all too soon

So let them be little 'cause they're only that way for a while
Give them hope, give them praise, give them love every day
Let them cry, let them giggle, let them sleep in the middle
Oh just let them be little

I've never felt so much in one little tender touch
I live for those kisses, prayers and your wishes
Now that you're teaching me things only a child can see
Every night while we're on our knees all I ask is please

Let them be little 'cause they're only that way for a while
Give them hope, give them praise, give them love every day
Let them cry, let them giggle, let them sleep in the middle
Oh just let them be little

So innocent, a precious soul, you turn around
It's time to let them go

So let them be little 'cause they're only that way for a while
Give them hope, give them praise, give them love every day
Let them cry, let them giggle, let them sleep in the middle


Oh just let them be little


Friday, August 10, 2012

Garden of Achin'...


Yesterday had me down for the count.  A long, "One Mississippi, Two Mississippi...Five Thousand Mississippi" type of count.  Why?  I'll tell you.  But for all of those people (me included) that tire of hearing about my ridiculous physical issues - now is your chance to run away from your computer.

This week I felt a spurt of energy!  So, Wednesday - when the boys went down for their afternoon naps - I grabbed my gardening gloves and went outside to weed.  There was only one big job which was to cut down my large daisies for the season.  The rest was "a little weed here - a little weed there" - not hard at all.  I was psyched.  Very psyched.  I felt normal and was so happy to have done something other than perfect the look of a slug.

The next morning, yesterday, I was not psyched.  At all.  I woke up in serious pain.  It took me a while just to walk to the bathroom.  Ed was concerned and told me if I needed him to come home, he'd figure it out.  He was hoping I could get an appointment with Dr. Trish or Dr. Kang, but I couldn't.  The pain wasn't touched by a strong pain med plus a strong prescription Tylenol.  Ed hugged me as I cried uncharacteristically and saw him off to work.  I was so sad.

I had a chat with the boys and told them that Mommy wasn't feeling great.  I used words like "achy" and "sore"... and heard them repeated back to me all day by Brian.  "Mommy isn't feeling good.  You're achy, Mama?"  "Gavin, Mommy is sore.  Right, Mama?"  It seemed like they were "extra good" all day, as if they sensed that I was struggling.  It was so sweet.  And it totally sucked.  The boys pretty much watched PBS and movies all day long.

I have to face it - I can't do the things I used to.  While getting out of hard labor sounds awesome, it's really not when you're physically unable.  

So, that's why I bailed on the journal yesterday...in case anyone was wondering.

In other news, the boys are GREAT!  Brian is still doing such a great job on the potty.  He had an accident today that was probably my fault.  I tested him during his afternoon rest time and he peed in his bed.  In retrospect, it really was way too early to test him.

Gavin is as sweet as always and hasn't wasted any time getting his strength and his great attitude back after his long hospitalization.  Now I just need to get his weight back and we'll be all set!!

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