Chasing Rainbows: Dancing Man...

Monday, April 8, 2013

Dancing Man...

Poor Gavin. I am back on the fence about the cold vs allergies today. Yes, he had a fever...but only once. Yes, his eyes are filled with mucous and very watery... but he isn't congested in his nose or chest. I don't know what to think. What I do know? He looks awful. Red under the eyes - red inside the eyes - and just... blah. I kept him home from school - and tomorrow we will go to the dental appointment at the hospital (thank God they said it's still okay to come!) - and I guess I'll just play it by ear after that. A bath today helped wash a lot of the eye mucous away, but it just keeps multiplying. Brian's cold started the same way, which is why I'm still unsure. Maybe Gavin has a true cold lurking around the corner.

This morning, while I paid some bills, I put a CD on for Gavin. Once the music came on, I watched with an open mouth and wide eyes while Gavin - for the first time EVER - started dancing!! By himself!! Check out these adorable videos...

Music has always made him so happy. It's been the one thing that has consistently calmed him down, soothed him to sleep (sometimes), and made him so, so happy. I love to think that he gets his love of music from me. Lord knows he doesn't get his flexibility from either of us!

And Brian. I love to think he gets his theatrics and humor from me.

Since I have two boys, I often wonder what my little daughter would have been like.

I suppose I'll never know. But today, when I held up a photo that I discovered among the mementos we packed from Granny's house (one I have NEVER seen before yesterday!) and asked Brian, "Who's this?"

He said, "Darcy!" without skipping a beat.

My heart skipped the beat instead.

I love my sweet boy and my little dancing man.

2 comments:

UrbanExpressionsApril 8, 2013 at 4:33 PM
Maybe a little music therapy is in Mr. Gavin's future. I've heard it does wonderful things. My brother played Mozart and other classical music while his children slept. They all have quite the appreciation for music. I believe there was even a series of cd's for kids awhile back called baby mozart.
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KatyApril 8, 2013 at 11:44 PM
Sounds more like allergies to me since he's not congested. I know allergy season has hit quickly and very hard this year. I have to take Claritin everyday. You could try that or Zyrtec. Benadryl works well too, but the drowsiness from it isn't enjoyable. But whether it's a cold or allergies, hopefully it resolves soon.
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Gavin's Playground Project

Gavin's Playground Project was born from my desire to see an "All Abilities" playground built at Nemours/A.I. duPont Hospital for Children in Wilmington, Delaware. This is the hospital where Gavin spent a lot of time during his life... and where he ultimately died, surrounded by friendly and familiar faces. To mark the one year anniversary of his death, I held a fundraiser on April 5, 2014. You can read all about it in THIS post.

We raised a LOT of money, but not enough for a playground! If you would like to contribute to help make this playground a reality - so no kids will ever have to sit on the sidelines watching their peers play - you can contribute directly to the hospital through the Chasing Rainbows fundraising page HERE. Your donation will go directly to the hospital for the playground and is tax deductible. You can also create your own fundraising team page and start collecting donations in honor of anyone you want!! There is also a mailing address on their page if you prefer to mail a check. Designate your contribution in memory of Gavin Leong - or write in that this is for the playground so your dollars will go to the right place. Thank you for your support of Gavin's Playground Project!

Gavin's Trust Project

I created "Gavin's Trust Project" to help support Gavin's friends who receive services from the Chester County Intermediate Unit in Pennsylvania. I wanted to continue to try to "make the impossible... possible" for kids like Gavin, knowing well how hard it can be to get much needed "special needs" items. It makes me happy to know that even after his death, Gavin continues to help others. Click HERE to learn more about the Trust Project! All of your donations, big and small, will be added to Gavin's Trust Project to help therapists and teachers get what they need for children in this program. You can write a check made out to CCIU and mail it to: Chester County Intermediate Unit, c/o Deb Hiller, 455 Boot Rd., Downingtown, PA 19335. Please be sure to add "Gavin's Trust Project" in the memo. Thank you on behalf of me and my little superhero!