Chasing Rainbows: Mellow Weekend...

Sunday, October 16, 2011

Mellow Weekend...

We had a pretty mellow weekend here. Despite having work to do over the last couple days, Ed was able to enjoy some time with the boys. Saturday we brought the boys outside in the driveway and he surprised them with a HUGE bubble wand that he bought. The boys LOVE bubbles!!

Brian, especially, was over the moon when he got a private lesson from Daddy.

Gavin decided to go strolling in his walker so the two of us took off up the driveway, down the driveway, into the backyard...he was motivated to walk!

Today was another nice day so we all took off for a walk around the block. I was optimistic and brought Gavin out in his KidWalk, but he didn't last too long before he pooped out. We went back and got his stroller and continued on. Brian loves walking and is so good holding my hand or staying close to us.

Of course we had to stop to shuffle through every leaf pile - and occasionally throw some in the air.

Tomorrow I plan to devote a whole blog to the iPad. I'll list the apps we have for Gavin and Brian - let you know which ones I like and which ones were regrettable. If you have an iPad or an iPhone - and if you have a baby or a toddler - special needs or not - this may be interesting to you. I might be way behind the times with apps that may have been out for years...but who knows, you may find one that you like in our pretty big selection!

This Wednesday I'm attending an all day conference on using the iPad for special education purposes with several of Gavin's therapists. I'm hoping that I learn something useful so I can be sure Gavin is getting the greatest benefit from this technology. I sometimes feel so bad that it's not something he can turn on and access easily like Brian.

But - like everything so far - he'll get there in his own time. This I know for sure. Why? Well - I'm pretty sure I didn't think I'd ever see THIS a year ago...

1 comment:

marie clareOctober 18, 2011 at 10:12 AM
Can I ask what cover you use for the ipad. Oh and awesome on the potty training! I cant imagine when we will ever get to doing that but you have inspired me to at least start thinking about it!
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Gavin's Playground Project

Gavin's Playground Project was born from my desire to see an "All Abilities" playground built at Nemours/A.I. duPont Hospital for Children in Wilmington, Delaware. This is the hospital where Gavin spent a lot of time during his life... and where he ultimately died, surrounded by friendly and familiar faces. To mark the one year anniversary of his death, I held a fundraiser on April 5, 2014. You can read all about it in THIS post.

We raised a LOT of money, but not enough for a playground! If you would like to contribute to help make this playground a reality - so no kids will ever have to sit on the sidelines watching their peers play - you can contribute directly to the hospital through the Chasing Rainbows fundraising page HERE. Your donation will go directly to the hospital for the playground and is tax deductible. You can also create your own fundraising team page and start collecting donations in honor of anyone you want!! There is also a mailing address on their page if you prefer to mail a check. Designate your contribution in memory of Gavin Leong - or write in that this is for the playground so your dollars will go to the right place. Thank you for your support of Gavin's Playground Project!

Gavin's Trust Project

I created "Gavin's Trust Project" to help support Gavin's friends who receive services from the Chester County Intermediate Unit in Pennsylvania. I wanted to continue to try to "make the impossible... possible" for kids like Gavin, knowing well how hard it can be to get much needed "special needs" items. It makes me happy to know that even after his death, Gavin continues to help others. Click HERE to learn more about the Trust Project! All of your donations, big and small, will be added to Gavin's Trust Project to help therapists and teachers get what they need for children in this program. You can write a check made out to CCIU and mail it to: Chester County Intermediate Unit, c/o Deb Hiller, 455 Boot Rd., Downingtown, PA 19335. Please be sure to add "Gavin's Trust Project" in the memo. Thank you on behalf of me and my little superhero!